An Information Service for EDS and related disorders

What does the service consist of?

After 40 years of academic and private practice encompassing over 27,000 new medical genetic evaluations, I am changing my genetics practice to an information service that will be backed by continued article and book publication. I stopped in-person clinics in 2018 due to my own arthritis issues and now will provide information including standardized history and physical forms that will allow people to assess their probability of having an EDS diagnosis. Patients can send in their forms for my interpretation and I will provide a packet with a summary letter that they can take to their doctors to obtain appropriate diagnoses of EDS and dysautonomia. I will provide the information free of charge but ask payment of $100 to provide the summary letter and information packet. I no longer have the resources to coordinate DNA testing but the $100 fee will include my interpretation of DNA testing provided with the history-physical information or sent to me afterwords. For patients with large numbers of history-physical findings on my standard forms and who additionally register significant difficulties with work, school, and activity functions on my physical form, I also offer referral to a specialist in social security disability who can help them with an application; there is of course no guarantee that the specialist or court will approve their application.
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The next page has a description of the information service that describes options for the summary letter and possible referral for disability consideration. If you are interested in receiving the described information package you should email me at golderwilson@gmail.com and I will forward it to you with the introductory letter, medical history/natural-family history/physical forms along with a table of these finding frequencies in 710 EDS patients, discussion of how EDS clinical and DNA findings correlate, an overview of preventive management and therapy for EDS, and an example of my summary letter. The latter table, correlation discussion, overview of therapy, and summary letter example are shown on later pages of this website.